Hey everyone! I wanted to do a spotlight post on this fundraiser that Lydia Kang - and some other great authors - have started to raise money for CCHS research. Read on for more information on the disease, the fundraiser, and how you can help!
A Literary Fundraiser to Benefit Rare Respiratory
Disorder
Authors
around the country have come together to raise money for Congenital Central Hypoventilation
Syndrome (CCHS), a rare, life-threatening disorder that affects breathing. The
initiative is spearheaded by author and physician, Lydia
Kang,
whose debut novel, CONTROL, features a protagonist with CCHS.
"When I wrote CONTROL, I wanted to create a heroine who faced struggles that readers don't always get to see,” says Kang. “After the book released, I wanted to bring a focus back to the non-fictional heroes--the children with CCHS and the people who champion them."
Authors
around the country have come together to raise money for Congenital Central Hypoventilation
Syndrome (CCHS), a rare, life-threatening disorder that affects breathing. The
initiative is spearheaded by author and physician, Lydia
Kang,
whose debut novel, CONTROL, features a protagonist with CCHS."When I wrote CONTROL, I wanted to create a heroine who faced struggles that readers don't always get to see,” says Kang. “After the book released, I wanted to bring a focus back to the non-fictional heroes--the children with CCHS and the people who champion them."
The
funds raised will go to the Center of
Autonomic Medicine in Pediatrics, or CAMP, a program run through Ann
& Robert H. Lurie Children’s Hospital of Chicago. There, With sophisticated
diagnostic testing and pioneering research, CAMP provides individualized
services for these patients referred from 50 different countries and conducts
research aimed to maximize their quality of life.Since this disease primarily affects children, it’s fitting that most of the authors participating in the fundraiser write for children, tweens and teens. Donors will receive thank you gifts ranging from bookmarks and stickers, to three and five book bundles, to a character name in an upcoming book from one of the participating authors. Everyone who donates $50 or more will be invited to participate in a virtual VIP party with the participating authors.
.JPG)
The
group hopes to raise $5000 or more and the fundraiser runs through September
20, 2014. "I've been so grateful for the authors who have donated so selflessly,” says Kang. “The CCHS community needs research dollars, so every effort to raise funds and awareness is a huge help."
To find out more about the disease, the fundraiser, and how you can help - please go to this link: https://fundrazr.com/campaigns/5q3c0.
Related links:
http://Lydiakang.com
https://www.luriechildrens.org/en-us/care-services/specialties-services/center-for-autonomic-medicine/Pages/index.aspx
No comments:
Post a Comment